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from the Communication dept. Joyce and Family - My name is Donna and I read the article in the ALS report. You story is exactly what me and my husband are living. My husband was diagnosed in Nov. of 1997. He is currently on a vent at the Goddard Center in Stoughton. He has been on a vent for 4 1/2 years. He can only move his legs and feet a very small amount and he has facial expressions. We communicate with a plexiglass board with letters on it. It has been a god send. I read the Joyce communicates by each of you saying the alphabet and that is what me and Ed had done at the beginning. The board (as we call it) is amazing to use and communicate with. We have been featured in the newspaper and will be on NECN in the middle of October (showing the board) and how to use it. I would love to have you email me back on this and maybe we could get together. I don't get on the computer much because I work and also visit Ed everyday. I will try to check my email each day to hear from you. Again, we know what it takes to be fighting this disease everyday, we have been doing it since 1997!!! Hope to hear from you soon! < Prayers are With you | My Mom and Dad >
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I know exactly what you are going thru.
