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Re: My Mom and Dad
by Patti on Monday March 13, @07:08PM
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| Hi Donna ! WOW - your story is somewhat to similiar to mine ( and to Joyce's) . My Mom became ill in Feb 2000 - she was sick and in Hospice for 8 monyhs. She passed away in Dec 2000.Just 3 months later , my Dad was diagnosed with Bulbar ALS. He was 74 and never in the hospital EVER . He passed away 16 months later. He was in a wheelchair - but he could stand to tranfer from chair to bed. He couldn't speak or eat or drink - I had to suction him just a few times. He died peacefully in his sleep after being unresponsive for 2 days. In that respect we were " lucky " - no ventilator etc... My Dad even had the same Hospice nurse ! Ill parents mean shuffling work schedules , shuffling kids , and being strong. Some one always has it worse than we do. We , like Joyces family, will always know that we kept our parents comfortable and cared for them like they did for us while we were growing up. I think ALS is getting " attention" now that it needs - its a devastating illness and needs a cure. Hopefully , in Joyces time , there will be a cure. That would be wonderful. Hats off to Joyces family , to you & your family ,and all the ALS patients and their caregivers - Thanks for the opportunity to share my story . Patti |
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