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There is something in the air
by Anthony & Annie Papoulias on Friday June 13, @04:45AM
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Annie Papoulias
15, Pericles Street
Mytilinioi, 83101
Samos Island
GREECE
June 13, 2003
Dear Joyce,
How have you been? We are co-sufferers, you know. I have bulbar ALS and progressive palsy. In fact, I have been a PALS for about three and a half years. However, I can still maintain nutrition and hydration. There is bound to be a cure within this year. Call it premonition, intuition or whatever. Just hold on, Joyce. It is only a matter of time.
Try including Bee Pollen, Bee Propolis and Royal Jelly in your regime as well as Protein and Creatine, not to mention Methylcobalamin, i.e. Vitamin B12 analogue.
All our love and respect,
Anthony & Annie
PS: Fixed phone : 0030-22730-62323
-- Mobile phone: 0030-697-7903291
Fax number : 0030-22730-23907
E-mail : akpapoulias@hotmail.com
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Re: My mom
by Marian Rozzen on Monday June 16, @08:31PM
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Great job on your site!!! My heart goes out to you and your family. Tell your Mom I wish I could play a game of Maj jongg with her. Hang in there! This is not a fun game.
Marian
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Re: My mom
by Marj on Tuesday June 17, @10:48PM
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Dear Scott:
I think this is a wonderful thing you are doing for your Mom. I hope that my family would be as good as yours were I in that situation, I am sure that they would be. I am praying for a cure for this totally dreadful disease. Keep it up Scott. I already feel like a know your family.
Marj
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Re: My mom
by Curt on Wednesday June 18, @08:05AM
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Great website. You are doing a wonderful thing for your mom. Your family is in my prayers.
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Re: My mom
by Shirley Fredlund on Sunday August 03, @06:23PM
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Hi Scott,
I understand your family has visited the Voice for Joanie web-site and you are now linked to us. We have assisted people with ALS for over 13 years now and have met so many nice people.
Where do you live?
I just want you to know how important the support you are giving your Mom is to her. God bless you and take good care of you and your family.
Sincerely, Shirley www.voiceforjoanie.org
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my prayers.....
by Raissa Carey on Friday April 01, @10:03AM
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I wish I had some information that would help ease the sorrow you must be feeling. I will pray for you and your family. The power of prayer is stronger than most believe it to be.I am certain Joyce is a wonderful person as are her children. I have had the oportunity to speak with your father and I know he is a giving kind person as well. I wish you all the strength and support needed to help your family through this and I pray there will be a cure.
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Re: my prayers.....
by Devanand on Tuesday August 22, @05:03AM
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Dear friends,
I happened to see your pages thru google when I was trying find something about the twitchings I am having for the past 1 month in my thighs,some times on the fore arm and some times near the knee.
At present eventhough, its not very freuquent, I would still say they occur atleast 5 times in an hour.
Apart from this, I dont have any weakness or palsy.
I would like to know, whats the starting symtoms of ALS. Is it like the one I am feeling now?
Whats the diagnosis method and treatment?
Thanks in advance
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My mom
